|Auggie 32 weeks and 3 days|
|Oliver and Auguste|
|Family picture taken by my dear friend Julie Blum as she visited from Baltimore|
|Trying to enjoy every bit of my last pregnancy|
On Tuesday, Christmas Day, our Auguste made it to the 32 weeks mark.
I went to the doctor today for an ultrasound and a visit with the maternal fetal docs in Greenville. Things looked really good. His chest was almost completely lear of fluid with only a small amount of fluid at the base of each lung. His abdomen was still distended. Two measurments were taken, one measuring 36 weeks and one measuring 37 weeks and 5 days. A week and a half ago the abdomen measured 35 weeks and 5 days. So, basically it wasn't clear if the abdomen was stable, improved or worse....but Dr. Dillinger was still unimpressed and doesn't seem to be overly concerned regarding the abdomen, stating once again that it is the last to reabsorb. I am of course bothered by it, but I am relieved by the way the chest looks. They estimated the abdomen in the 97th percentile, obviously...and they estimated weight at 6 lbs 9 oz (give or take a lb) and that of course is mostly extra fluid.
Dr. Johnson at CHOP has told me that he has not seen things get worse after 33 weeks, and therefore, I think i will breathe a sigh of relief when things look good next week (wishful thinking)....however, due to the nature of this horrible hydrops, I am not sure I will be at ease until I hear him crying and see him doing well...as I know that all of these babies present differently, and anything can still happen.
However, this is not to say I am not thrilled about the way things looked today.
We took a few more photos. This child has had one to two ultrasounds a week for the past 13 weeks and yet, I can never get a very good photo of him because he HATES the paparazzi. He always holds his hands over his face and is very uncooperative, but here is the latest image of today. The little parts of him we do get photos of are quite beautiful.
Can you believe we have been on this journey for 13 weeks? I have reflected a lot lately about those first few weeks. The idea that termination was recomended, and that had we taken that route we would have never had all these experiences, good or bad...it amazes me. I look at his little face and I thank God that we never considered such a thing. Our lives have been changed so greatly by this little boy and I have to keep pinching myself as the weeks pass and he keeps improving, because I truly never expected things to move this direction. I prayed for it, hoped for it, but truly looked at the reality of the situation and the logical part of me did not think it was possible...and yet, today, on his scan, his lungs looked so big and full and expanded to the chest wall and he keeps kicking at me (which at this point is quite painful) and I dare not complain because I am just so very grateful for every second.
I wanted to post something beautiful written by my friend Jaclyn, after the loss of her sweet Gianna on 12/26/2012. Most of you know that Jaclyn and I met on a hydrops support group page form facebook and became fast friends due to the similarities and the fact that we were both getting treated by the same doctors at CHOP and had due dates in the same window. I am devastated by her recent loss...but her strength in the face of this storm has enocuraged me. I loved how she described what she had learned from carrying a baby with this condition, and it reminds me that every minute is worth it.
I am so sorry for the loss of your little baby girl Gianna Renee Natale! What a beautiful story you have, with pictures including!ReplyDelete
Thank you. I did not lose my child, but my friend lost hers, and that was an excerpt from something she wrote. Our son, Auguste, is still currently fighting the same condition and we are still praying for his miracle.ReplyDelete